Objectives: Esophageal atresia (EA) is a rare malformation characterized of discontinuity of the esophagus, concurrent with or without a tracheoesophageal fistula (TEF). We report the validity and reliability of a condition-specific quality of life (QOL) tool for EA/TEF children, the age-adapted EA-QOL©-questionnaires, when used in Sweden and Germany. Methods: 124 families of children with EA/TEF participated in the study; 53 parents completed the EA-QOL©-questionnaire for children aged 2–7 years; 62 children/71 parents the EA-QOL©-questionnaire for children 8–17 years. Feasibility was determined from the percentage of missing item responses. Based on clinical data and previously validated generic QOL-instruments (PedsQLTM 4.0, DISABKIDS-12), the final EA-QOL©-scores were evaluated against hypotheses of validity (known-groups/ concurrent/convergent) and reliability (internal consistency/retest reliability of scores over 3 weeks). Significant level was p
from Gastroenterology via xlomafota13 on Inoreader https://ift.tt/2KIZiUw
via IFTTT
Εγγραφή σε:
Σχόλια ανάρτησης (Atom)
Δεν υπάρχουν σχόλια:
Δημοσίευση σχολίου
Σημείωση: Μόνο ένα μέλος αυτού του ιστολογίου μπορεί να αναρτήσει σχόλιο.