Τρίτη 16 Φεβρουαρίου 2016

Spinal Cord Injury – Quality of Life Satisfaction with Social Roles and Activities

Acronym:
SCI-QOL Satisfaction with SRA
Purpose:
To assess the satisfaction of individuals with spinal cord injury with their social roles and activities.
Description:
The SCI-QOL Satisfaction with SRA measure is an item response theory (IRT)-calibrated item bank with 35 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or short form (SF). 14 items are from PROMIS and Neuro-QOL, 20 are from Neuro-QOL only, and 1 is unique to SCI-QOL.
Area of Assessment: Life Participation, Social Relationships
Body Part: Not Applicable
ICF Domain: Participation
Domain: General Health
Assessment Type: Patient Reported Outcomes
Length of Test: 05 Minutes or Less
Time to Administer:
5 minutes
Number of Items: There are 28 items in the entire item bank. The short form has 10 items. The CAT can present 4-12 items, depending on the user's time vs. accuracy preferences.
Equipment Required:
The Short Form requires only the printed form and a pencil. A CAT administration requires a desktop, laptop, or tablet computer with internet connection and login to AssessmentCenter.net. Access to the short form, and administration of CATs through Assessment Center, is available through SCI-QOL@udel.edu
Training Required:
Yes. SCI-QOL Satisfaction with SRA article (Heinemann et al., 2015) and, if administering CATs, Assessment Center User Manual.
Type of training required: Reading an Article/Manual
Cost: Free
Actual Cost:
Free
Age Range: Adult: 18-64 years, Elderly adult: 65+
Administration Mode: Computer
Diagnosis: Spinal Cord Injury
Populations Tested:
Spinal Cord Injury
Standard Error of Measurement (SEM):
Depends on the mode of administration.
  • Mean SEM of full item bank = 0.09 (range = 0.06 – 0.53).
  • Mean SEM of 10-item short form = 0.16 (range = 0.10 – 0.57).
  • Mean SEM of variable-length CAT (min = 4, max = 12 items) = 0.20 (range = 0.15 – 0.54).
Minimal Detectable Change (MDC):

(Calculated from SEM).

  • MDC of the full item bank = 0.25.
  • MDC of an 8-item fixed-length CAT = 0.44.
  • MDC of a variable-length CAT = 0.55
Minimally Clinically Important Difference (MCID):
Not Established
Cut-Off Scores:
Not Established
Normative Data:
Mixed healthy/neurological population (Gershon et al., 2012)
  • Scores on the SCI-QOL Ability to Participate in SRA reference the Neuro-QOL sample, which comprise a mixed sample of neurological healthy adults and adults with neurological illnesses (stroke, Parkinson's disease, multiple sclerosis, epilepsy, or amyotrophic lateral sclerosis).
Test-retest Reliability:

Traumatic SCI (Heinemann et al., 2015; n=641, mean age = 42.9(15.3); time post injury = 7.1 years (9.8); 44% paraplegia, 55% tetraplegia)

 
 
 
  • Excellent test-retest reliability (ICC = .77)
Interrater/Intrarater Reliability:
Not Applicable
Internal Consistency:

Traumatic SCI (Heinemann et al., 2015)

 
  • Excellent internal consistency (Chronbach's alpha = .XX)
Criterion Validity (Predictive/Concurrent):

Traumatic SCI (data in preparation)

 
  • Excellent concurrent validity predicting the Satisfaction with Life Scales; r = .65) and Adequate concurrent validity predicting the Craig Handicap Assessment and Reporting Technique (CHART; r = .36).
Construct Validity (Convergent/Discriminant):

Traumatic SCI (manuscript in preparation)

 
  • The SCI-QOL Satisfaction with SRA item bank demonstrated good validity by correlating strongly with measures of self-esteem (Excellent: SCI-QOL Self-Esteem r = .67), depression (Excellent: PHQ-9 r = -.60), psychological trauma (Adequate: SCI-QOL Psychological Trauma r = .51), and independence (Excellent: SCI-QOL Independence = .70).
Content Validity:
Content was derived from focus groups and cognitive interviews with individuals with traumatic SCI (n=65) and clinicians who specialize in SCI (n=42), as well as focus groups with individuals with other neurological illnesses (n=64) and their caregivers (n=19).
Face Validity:
Not formally established, but content was generated from individuals with SCI and expert clinicians, so face validity is strong.
Floor/Ceiling Effects:
Excellent: minimal floor or ceiling effects (Heinemann et al., 2015). With a 10-item short form, 5.2% of respondents were at ceiling and 0.3% were at floor.
Responsiveness:
Not Established
Considerations:
None
Bibliography:
Gershon et al. (2012). Neuro-QOL: quality of life item banks for adults with neurological disorders: item development and calibrations based upon clinical and general population testing. Quality of Life Research, 21(3), 476-486.
 
Heinemann et al. (2015). Development and psychometric characteristics of the SCI-QOL Ability to Participate and Satisfaction with Social Roles and Activities item banks and short forms. Journal of Spinal Cord Medicine, 38(3), 397-408
Year published: 2015
Instrument in PDF Format: Yes


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