Spinal Cord Injury – Quality of Life Depression

Link to instrument: CATs and short forms available at http://ift.tt/1hR3vma (request access through SCI-QOL@udel.edu). Item bank and short form PDFs available through SCI-QOL@udel.edu.

Acronym:

SCI-QOL Depression

Purpose:

Assess symptoms of depression in individuals with spinal cord injury.

Description:

The SCI-QOL Depression measure is an item response theory (IRT)-calibrated item bank with 28 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or short form (SF). Many items are shared with the PROMIS (18 of 28 items) and Neuro-QOL (23 of 28 items) Depression item banks.

Area of Assessment: Depression

Body Part: Not Applicable

ICF Domain: Body Function

Domain: Emotion

Assessment Type: Patient Reported Outcomes

Length of Test: 05 Minutes or Less

Time to Administer:

5 minutes

Number of Items: There are 28 items in the entire item bank. The short form has 10 items. The CAT can present 4-12 items, depending on the user's time vs. accuracy preferences.

Equipment Required:

The Short Form requires only the printed form and a pencil. A CAT administration requires a desktop, laptop, or tablet computer with internet connection and login to AssessmentCenter.net. Access to the short form, and administration of CATs through Assessment Center, is available through SCI-QOL@udel.edu.

Training Required:

Yes. SCI-QOL Depression article (Tulsky et al 2015) and, if administering CATs, Assessment Center User Manual.

Type of training required: Reading an Article/Manual

Cost: Free

Actual Cost:

Free

Age Range: Adult: 18-64 years

Administration Mode: Computer

Diagnosis: Spinal Cord Injury

Populations Tested:

Spinal Cord Injury

Standard Error of Measurement (SEM):

Depends on the mode of administration. The SEM of the full item bank is 0.21. The SEM of an 8-item fixed-length CAT is 0.27. The SEM of a variable-length CAT (min = 4, max = 12 items) is 0.31.

Minimal Detectable Change (MDC):

Calculated from SEM). The MDC of the full item bank is 0.49. The MDC of an 8-item fixed-length CAT is 0.63. The MDC of a variable-length CAT is 0.72

Minimally Clinically Important Difference (MCID):

Not Established.

Cut-Off Scores:

Holdnack et al. (in preparation) created a "cross-walk" table to transform SCI-QOL Depression scores to scores on the PHQ-9, a gold standard measure of depression with well-established cut scores. The SCI-QOL Depression scores below are the equivalent of PHQ-9 cutoff scores. T52-T58: Mild Depression T60-64: Moderate Depression T65-T67: Moderate-Severe Depression T68+: Severe Depression

Normative Data:

General population (2000 U.S. Census) . The normative data reference the calibration sample from PROMIS, which matches the demographics of the 2000 U.S. Census.

Test-retest Reliability:

Traumatic SCI (Tulsky et al., 2015; n=716, mean age = 43.0(15.3); time post injury = 7.1 years (10.0); 45% paraplegia, 54% tetraplegia) Excellent test-retest reliability (ICC = .80)

Interrater/Intrarater Reliability:

N/A

Internal Consistency:

Traumatic SCI (Tulsky et al., 2015) Excellent internal consistency (Chronbach's alpha = .96)

Criterion Validity (Predictive/Concurrent):

Traumatic SCI (Tulsky et al., 2015) Excellent concurrent validity predicting the PHQ-9 score (r = .76)

Construct Validity (Convergent/Discriminant):

Traumatic SCI (Tulsky et al., in preparation) The SCI-QOL Depression item bank demonstrated good convergent validity by correlating strongly with measures of anxiety (GAD-7 r = .59), satisfaction with life (Satisfaction with Life Scale r = -.62), resilience (SCI-QOL Resilience r = -.73), and positive affect (SCI-QOL Positive Affect r = -.68). The SCI-QOL Depression item bank demonstrated good discriminant validity by weakly correlating with measures of fine motor functioning (SCI-QOL Fine Motor r = -.16),

Content Validity:

Some SCI-QOL items were derived from the focus groups and cognitive interviews that founded the PROMIS and/or Neuro-QOL measurement systems. The Neuro-QOL focus groups comprised 64 patients with neurological illness and 19 caregivers. Other SCI-QOL items were derived from focus groups and interviews with individuals with traumatic SCI (n=65) and clinicians who specialize in SCI (n=42).

Face Validity:

Not formally established, but content was generated from individuals with SCI and expert clinicians, so face validity is strong.

Floor/Ceiling Effects:

Excellent: minimal floor or ceiling effects (Tulsky et al., 2015). With the full item bank, 0.1% of respondents were at floor and 3.1% were at ceiling.

Responsiveness:

Not Established

Considerations:

The PHQ-9 contains 4 items related to somatic concerns (fatigue, sleep, appetite, and motor slowing). Recent data suggests that when

Bibliography:

Tulsky et al. (2015). Measuring depression after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Depression item bank and linkage with PHQ-9. Journal of Spinal Cord Medicine, 38(3), 335-346.

 

Year published: 2015

Instrument in PDF Format: Yes

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