Do Children and Adolescents with Inflammatory Bowel Disease Complete Clinical Disease Indices Similar to Physicians?.

Objective: The degree to which children and adolescents with inflammatory bowel disease (IBD) complete clinical disease activity indices in accordance with their physician is indefinite. Therefore, we investigated the agreement between patient- and physician-based clinical indices in children and adolescents with a previous diagnosis of IBD. Methods: In this cross-sectional study, IBD patients (8-18 years) were included prospectively. Patients completed a patient-based short Pediatric Crohn's Disease Activity Index (shPCDAI) for Crohn's disease or the Pediatric Ulcerative Colitis Activity Index (PUCAI) for ulcerative or indeterminate colitis. Physicians completed the original physician-based shPCDAI or PUCAI. Agreement was calculated with linear weighted kappa. Results: In total, 154 pairs of clinical indices were collected: 89 pairs of shPCDAI's (median age at assessment 15.6 years, 61% male) and 55 pairs of PUCAI's (median age at assessment 14.0 years, 44% male). The shPCDAI disease activity category only fairly agreed between patient- and physician-based indices (kappa: 0.40 [95%CI 0.24-0.55], p

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