Epilepsy treatment priorities: answering the questions that matter

Introduction

‘Nothing about them, without them’ is the clarion call of those who are committed to genuine user participation in research. The James Lind Alliance brings patients, carers and clinicians together as priority sharing partnerships to ensure that research is targeted at questions that matter to these interested parties. In 2010, we contributed to the Database of Uncertainties of the Effects of Treatments (DUETs). Three hundred ninety-eight questions regarding treatments and their effects were produced from focus groups composed of people with epilepsy, their carers and relatives, or epilepsy clinicians and researchers.1 The questions were subsequently ranked by participants and thematically grouped to identify similarities and comparisons. The top-ranked questions were all deemed ‘unanswered’ at the time of publication following thorough scrutiny of online databases.2 It was our hope by publishing the report and by uploading all questions to the National Health Service Evidence DUETs webpage

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