Τρίτη 21 Ιουνίου 2016

Spinal Cord Injury - Quality of Life Bowel Management Difficulties

Acronym:
SCI-QOL Bowel Management Difficulties
Purpose:
The SCI-QOL Bowel Management Difficulties instrument assesses difficulties associated with bowel management in individuals with spinal cord injury (SCI).
Description:

The SCI-QOL Bowel Management Difficulties measure is an item response theory (IRT)-calibrated item bank with 26 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or 9 item short form (SF).

Area of Assessment: Incontinence, Quality of Life
Body Part: Not Applicable
ICF Domain: Body Function
Domain: General Health
Assessment Type: Patient Reported Outcomes
Length of Test: 05 Minutes or Less
Time to Administer:
<5 Minutes
Number of Items: There are 26 items in the entire bank. The short form has 9 items. The CAT can present 4-12 items, depending on the user's time vs. accuracy preferences.
Equipment Required:
The Short Form (SF) requires only the printed form and a pencil. A CAT administration requires a desktop, laptop, or tablet computer with internet connection and login to AssessmentCenter.net.
 
Access to the short form, and administration of CATs through Assessment Center, is available through SCI-QOL@udel.edu.  
Training Required: Yes. SCI-QOL Bowel Management Difficulties article (Tulsky et al., 2015) and, if administering CATs, the Assessment Center User Manual.
Type of training required: Reading an Article/Manual
Cost: Free
Actual Cost:
Free
Age Range: Adult: 18-64 years, Elderly adult: 65+
Administration Mode: Computer
Diagnosis: Spinal Cord Injury
Populations Tested:
Spinal Cord Injury
Standard Error of Measurement (SEM):
Depends upon mode of administration:
  • Full Item Bank: Mean SEM= 0.28 (Range= 0.10-0.59)
  • 9-Item Short Form: Mean SEM= 0.36 (Range= 0.15 - 0.60)
  • 9-Item Fixed CAT: Mean SEM= 0.34 (Range= 0.12-0.59)
  • Variable-length CAT: Mean SEM= 0.33 (Range= 0.13 - 0.56)
  • Variable Length CAT (Min 4): Mean SEM= 0.35 (0.17-0.56) 
Minimal Detectable Change (MDC):
Calculated Using Mean SEM:
  • Full Item Bank: MDC= 12.27
  • 9-Item Fixed CAT: MDC= 11.8
  • Variable Length CAT: MDC= 11.91
Minimally Clinically Important Difference (MCID):
Not Established
Cut-Off Scores:
Not Established
Normative Data:
(n= 757; Mean Age= 42.9, SD= 15.5; Time Post Injury= 6.7, SD= 9.9; 42% Paraplegia, 58% Tetraplegia)
Test-retest Reliability:
Traumatic SCI(Tulsky et al., 2015)
  • Adequate: (Pearson's r= 0.74)
  • Adequate: (ICC= 0.74)
Interrater/Intrarater Reliability:
Not Applicable
Internal Consistency:
Traumatic SCI(Tulsky et al., 2015)
  • Full Item Bank - Excellent: (Cronbach's Alpha= 0.95)
Criterion Validity (Predictive/Concurrent):
Not Established
Construct Validity (Convergent/Discriminant):
Not Established
Content Validity:
Items were derived from focus groups and interviews with individuals with traumatic SCI (n=65) and clinicians who specialize in SCI care (n=42). (see Tulsky et al., 2011).
Face Validity:
Not statistically assessed, but content was generated in collaboration with SCI patients and expert clinicians, so face validity is believed to be strong.
Floor/Ceiling Effects:
Traumatic SCI(Tulsky et al., 2015)
 
Full Item Bank:
  • Floor Effect: Adequate (16%)
  • Ceiling Effect: Excellent (0.13%)

9-Item Short Form:

  • Floor Effect: Poor (30%)
  • Ceiling Effect: Excellent (0.4%)

9-Item Fixed-length CAT:

  • Floor Effect: Poor (28.5%)
  • Ceiling Effect: Excellent (0.13%)

Variable Length CAT (Min 8):

  • Floor Effect: Adequate to Excellent (2.64%)
  • Ceiling Effect: Excellent (0.13%)

Variable-length CAT (Min 4):

  • Floor Effect: Adequate to Excellent (2.64%)
  • Ceiling Effect: Excellent (0.13%)
Responsiveness:
Not Established
Considerations:
None
Bibliography:
Tulsky, D.S., Kisala, P. Tate, D.G., Spungen, A.M., & Kirshblum, S.C. (2015). Development and psychometric characteristics of the SCI-QOL Bladder Management Difficulties and Bowel Management Difficulties item banks and short forms and the SCI-QOL Bladder Complications Scale. Journal of Spinal Cord Medicine, 38(3), 288-302.
 
Tulsky, D.S., Kisala, P.A., Victorson, D. Tate, D., Heinemann, A.W., Amtmann, D., & Cella, D. (2011). Developing a contemporary patient-reported outcomes measure for spinal cord injury. Archives of Physical Medicine and Rehabilitation, 92(10), S44-S51.
Year published: 2015
Instrument in PDF Format: Yes


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