Spinal Cord Injury - Quality of Life Independence

Link to instrument: CATs and short forms available at http://ift.tt/1hR3vma (request access through SCI-QOL@udel.edu). Item bank and short form PDFs available through SCI-QOL@udel.edu.

Acronym:

SCI-QOL Independence

Purpose:

The SCI-QOL Independence instrument assesses perceptions of personal independence, ability to communicate needs with others, and a sense of control over one's life in individuals with spinal cord injury.

Description:

The SCI-QOL Independence measure is an item response theory (IRT)-calibrated item bank with 8 items that is available for administration as a computer adaptive test or 8 item short form (SF). All items generated for the SCI-QOL Independence measure are new, and do not share overlap with the PROMIS or Neuro-QOL measurement systems.

Area of Assessment: Quality of Life

Body Part: Not Applicable

ICF Domain: Activity, Participation

Domain: General Health

Assessment Type: Patient Reported Outcomes

Length of Test: 05 Minutes or Less

Time to Administer:

< 5 Minutes

Number of Items: 8

Equipment Required:

The short form requires the form and a pencil. A CAT administration requires a computer with internet connection.

Access to the CATs through Assessment Center, is available through SCI-QOL@udel.edu.  

Training Required: Yes, the Assessment Center User Manual. Manuscript forthcoming.

Type of training required: Reading an Article/Manual

Cost: Free

Actual Cost:

Free

Age Range: Adult: 18-64 years, Elderly adult: 65+

Administration Mode: Computer

Diagnosis: Spinal Cord Injury

Populations Tested:

Spinal Cord Injury

Standard Error of Measurement (SEM):

Not Established

Minimal Detectable Change (MDC):

Not Established

Minimally Clinically Important Difference (MCID):

Not Established

Cut-Off Scores:

Not Established

Normative Data:

Traumatic spinal cord injury. The normative data are calibrated on adults with traumatic spinal cord injury so the mean score (T = 50) indicates a score that is normal for an adult with a traumatic SCI. Deviations from the mean indicate deviations from what is normal for an individual with a traumatic SCI. For example, a respondent with a score of T=60 reported more attributes of resilience than +1 standard deviation (84%) of individuals with traumatic SCI.

Test-retest Reliability:

Traumatic SCI: (Kisala et al., 2015)

• Excellent: ICC= 0.84
• Excellent: Pearson's r= 0.84

Interrater/Intrarater Reliability:

Not Applicable

Internal Consistency:

Traumatic SCI: (Kisala et al., 2015)

• Excellent: Cronbach's Alpha= 0.89

Criterion Validity (Predictive/Concurrent):

Not Established

Construct Validity (Convergent/Discriminant):

Not Established

Content Validity:

Items were derived from focus groups and interviews with individuals with traumatic SCI (n=65) and clinicians who specialize in SCI (n=42).

Face Validity:

Not statistically assessed, but content was generated from individuals with SCI and expert clinicians; therefore face validity is believed to be strong.  

Floor/Ceiling Effects:

Not Established

Responsiveness:

Not Established

Considerations:

None

Bibliography:

Tulsky et al., (2015). Overview of the Spinal-Cord Injury - Quality of Life (SCI-QOL) Measurement System. The Journal of Spinal Cord Medicine, 38(3), 257-269.

 

Tulsky et al., (2015). Methodology for the Development and Calibration of the SCI-QOL item banks. The Journal of Spinal Cord Medicine, 38(3), 270-287.

Year published: 2015

Instrument in PDF Format: Yes

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