Spinal Cord Injury – Quality of Life Ability to Participate in Social Roles and Activities

Link to instrument: CATs and short forms available at http://ift.tt/1hR3vma (request access through SCI-QOL@udel.edu). Item bank and short form PDFs available through SCI-QOL@udel.edu.

Acronym:

SCI-QOL Ability to Participate in SRA

Purpose:

To assess the ability of individuals with spinal cord injury to participate in social roles and activities.

Description:

The SCI-QOL Ability to Participate in SRA measure is an item response theory (IRT)-calibrated item bank with 27 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or short form (SF). Every item in the item bank was originally written for Neuro-QOL.

Area of Assessment: Life Participation, Social Relationships

Body Part: Not Applicable

ICF Domain: Participation

Domain: General Health

Assessment Type: Patient Reported Outcomes

Length of Test: 05 Minutes or Less

Time to Administer:

5 minutes

Number of Items: There are 28 items in the entire item bank. The short form has 10 items. The CAT can present 4-12 items, depending on the user's time vs. accuracy preferences.

Equipment Required:

The Short Form requires only the printed form and a pencil. A CAT administration requires a desktop, laptop, or tablet computer with internet connection and login to AssessmentCenter.net. Access to the short form, and administration of CATs through Assessment Center, is available through SCI-QOL@udel.edu. 

Training Required:

Yes. SCI-QOL Ability to Participate in SRA article (Heinemann et al., 2015) and, if administering CATs, Assessment Center User Manual.

Type of training required: Reading an Article/Manual

Cost: Free

Actual Cost:

Free

Age Range: Adult: 18-64 years, Elderly adult: 65+

Administration Mode: Computer

Diagnosis: Spinal Cord Injury

Populations Tested:

Spinal Cord Injury (SCI)

Standard Error of Measurement (SEM):

Depends on the mode of administration.

• Mean SEM of full item bank = 0.19 (range = 0.12 – 0.57).
• Mean SEM of 10-item fixed-length CAT = 0.18 (range = 0.11 – 0.56).
• Mean SEM of variable-length CAT (min = 4, max = 12 items) = 0.17 (range = 0.12 – 0.55).

Minimal Detectable Change (MDC):

 (Calculated from SEM)

• MDC of the full item bank = 0.53.
• MDC of an 8-item fixed-length CAT = 0.50.
• MDC of a variable-length CAT = 0.47

Minimally Clinically Important Difference (MCID):

Not Established

Cut-Off Scores:

Not Established

Normative Data:

Mixed healthy/neurological population (Gershon et al., 2012)

• Scores on the SCI-QOL Ability to Participate in SRA reference the Neuro-QOL sample, which comprise a mixed sample of neurological healthy adults and adults with neurological illnesses (stroke, Parkinson's disease, multiple sclerosis, epilepsy, or amyotrophic lateral sclerosis).

Test-retest Reliability:

Traumatic SCI (Heinemann et al., 2015; n=641, mean age = 42.9(15.3); time post injury = 7.1 years (9.8); 44% paraplegia, 55% tetraplegia)

 

 

 

• Adequate test-retest reliability (ICC = .74)

Interrater/Intrarater Reliability:

Not Applicable

Internal Consistency:

Traumatic SCI (Heinemann et al., 2015)

 

• Excellent internal consistency (Chronbach's alpha = .XX)

Criterion Validity (Predictive/Concurrent):

Traumatic SCI (data in preparation)

 

• Adequate concurrent validity predicting the Craig Handicap Assessment and Reporting Technique (CHART; r = .47).

Construct Validity (Convergent/Discriminant):

Traumatic SCI (manuscript in preparation)

 

• The SCI-QOL Ability to Participate in SRA item bank demonstrated good convergent validity by correlating strongly with measures of satisfaction with life (Satisfaction with Life Scale r = .61), independence (SCI-QOL Independence r = .70), and depression (PHQ-9 r = -.57).

Content Validity:

Content was derived from focus groups and cognitive interviews with individuals with traumatic SCI (n=65) and clinicians who specialize in SCI (n=42), as well as focus groups with individuals with other neurological illnesses (n=64) and their caregivers (n=19).

Face Validity:

Not formally established, but content was generated from individuals with SCI and expert clinicians, so face validity is strong.

Floor/Ceiling Effects:

• Excellent: minimal floor or ceiling effects (Heinemann et al., 2015). With a 10-item fixed-length CAT, 3.4% of respondents were at ceiling and 0.2% were at floor.

Responsiveness:

Not Established

Considerations:

None

Bibliography:

Gershon et al. (2012). Neuro-QOL: quality of life item banks for adults with neurological disorders: item development and calibrations based upon clinical and general population testing. Quality of Life Research, 21(3), 476-486

 

 

Heinemann et al. (2015). Development and psychometric characteristics of the SCI-QOL Ability to Participate and Satisfaction with Social Roles and Activities item banks and short forms. Journal of Spinal Cord Medicine, 38(3), 397-408.

Year published: 2015

Instrument in PDF Format: Yes

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