Spinal Cord Injury - Quality of Life Stigma

Link to instrument: CATs and short forms available at http://ift.tt/1hR3vma (request access through SCI-QOL@udel.edu). Item bank and short form PDFs available through SCI-QOL@udel.edu.

Acronym:

SCI-QOL Stigma

Purpose:

The SCI-QOL Stigma instrument assesses perceptions of prejudice and discrimination in individuals with spinal cord injury.

Description:

The SCI-QOL Stigma measure is an item response theory (IRT)-calibrated item bank with 23 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or 10 item short form (SF). 5 items were newly generated and 18 items were adapted from the Neuro-QOL measurement scale.

Area of Assessment: Mental Health, Quality of Life, Stress and Coping

Body Part: Not Applicable

ICF Domain: Body Function

Domain: Emotion

Assessment Type: Patient Reported Outcomes

Length of Test: 05 Minutes or Less

Time to Administer:

< 5 Minutes

Number of Items: There are 23 items in the entire item bank. The short form has 10 items. The CAT can present 4-12 items, depending on time and accuracy preferences.

Equipment Required:

The short form requires the form and a pencil. A CAT administration requires a computer with internet connection.

 

Access to the CATs through Assessment Center, is available through SCI-QOL@udel.edu.  

Training Required:

Yes. SCI-QOL Self-esteem article (Kisala et al., 2015) and the Assessment Center User Manual.

Type of training required: Reading an Article/Manual

Cost: Free

Actual Cost:

Free

Age Range: Adult: 18-64 years, Elderly adult: 65+

Administration Mode: Computer

Diagnosis: Spinal Cord Injury

Populations Tested:

Spinal Cord Injury

Standard Error of Measurement (SEM):

Depends upon mode of administration:

• Full Item Bank: Mean SEM= 0.16 (Range= 0.10-0.54)
• 10 Item Short Form: Mean SEM= 0.22 (Range= 0.14 to 0.57)
• 10-Item Fixed CAT: Mean SEM= 0.20 (Range= 0.13-0.55)
• Variable Length CAT (Min 8): Mean SEM= 0.20 (Range= 0.14 to 0.55)
• Variable Length CAT (Min 4): Mean SEM= 0.25 (0.19-0.55) 

Minimal Detectable Change (MDC):

Calculated Using Mean SEM:

• Full Item Bank: MDC= 8.5
• 10-Item Fixed CAT: MDC= 8.65
• Variable Length CAT: MDC= 8.45

Minimally Clinically Important Difference (MCID):

Not Established

Cut-Off Scores:

Not Established

Normative Data:

Neurological Disorder: The normative data are calibrated on adults with neurological disorders. The mean (T=50) indicates a score that is normal for an adult with a neurological disorder. (Kisala et al., 2015; n=611, Mean Age= 42.9, SD= 15.5; Time Post Injury= 6.7, SD= 8.7; 44% Paraplegia, 56% Tetraplegia)

Test-retest Reliability:

Traumatic SCI (Kisala et al., 2015; Baseline and 1-2 week retest assessments)

 

Full Item Bank CAT:

• Excellent: (Pearson's r= 0.80)
• Adequate: (ICC= 0.79)

10-Item Short Form:

• Excellent: (Pearson's r= 0.84)

Interrater/Intrarater Reliability:

Not Applicable

Internal Consistency:

Traumatic SCI: (Kisala et al., 2015)

• Full Item Bank: Excellent (Cronbach's Alpha= 0.94)
• 10-Item Short Form: Excellent (Cronbach's Alpha= 0.90)

Criterion Validity (Predictive/Concurrent):

Not Established

Construct Validity (Convergent/Discriminant):

Not Established

Content Validity:

Some items were adapted from the Neuro-QOL measurement systems. Other items were derived from focus groups and interviews with individuals with traumatic SCI (n = 65) and clinicians who specialize in SCI (n = 42) (see Tulsky et al., 2011).

Face Validity:

Not statistically assessed, but content was generated from individuals with SCI and expert clinicians; therefore face validity is believed to be strong.  

Floor/Ceiling Effects:

Traumatic SCI(Kisala et al., 2015)

 

Full Item Bank:

• Floor Effect: Adequate to Excellent (4.26%)
• Ceiling Effect: Excellent (0.16%)

10-Item Short Form:

• Floor Effect: Adequate to Excellent (4851%)
• Ceiling Effect: Excellent (0.16%)

10-Item Fixed Length CAT:

• Floor Effect: Adequate to Excellent (5.4%)
• Ceiling Effect: Excellent (0.16%)

Variable-Length CAT (Min 8):

• Floor Effect: Adequate to Excellent (4.75%)
• Ceiling Effect: Excellent (0.16%)

Variable Length CAT (Min 4):

• Floor Effect: Adequate to Excellent (4.75%)
• Ceiling Effect: Excellent (0.16%)

Responsiveness:

Not Established

Considerations:

None

Bibliography:

Kisala, P. A., Tulsky, D. S., Pace, N., Victorson, D., Choi, S. W., & Heinemann, A. W. (2015). Measuring stigma after spinal cord injury: Development and psychometric characteristics of the SCI-QOL Stigma item bank and short form. Journal of Spinal Cord Medicine, 38(3), 386-396

http://ift.tt/28L1bN7

Tulsky, D. S., Kisala, P. A., Victorson, D., Tate, D., Heinemann, A. W., Amtmann, D., & Cella, D. (2011). Developing a contemporary patient-reported outcomes measure for spinal cord injury. Archives of Physical Medicine and Rehabilitation, 92(10), S44-S51

http://ift.tt/28LvNSp

Year published: 2015

Instrument in PDF Format: Yes

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