Spinal Cord Injury - Quality of Life Bowel Management Difficulties

Link to instrument: CATs and short forms available at http://ift.tt/1hR3vma (request access through SCI-QOL@udel.edu). Item bank and short form PDFs available through SCI-QOL@udel.edu.

Acronym:

SCI-QOL Bowel Management Difficulties

Purpose:

The SCI-QOL Bowel Management Difficulties instrument assesses difficulties associated with bowel management in individuals with spinal cord injury (SCI).

Description:

The SCI-QOL Bowel Management Difficulties measure is an item response theory (IRT)-calibrated item bank with 26 items that is available for administration as a computer adaptive test (CAT; range 4-12 items) or 9 item short form (SF).

Area of Assessment: Incontinence, Quality of Life

Body Part: Not Applicable

ICF Domain: Body Function

Domain: General Health

Assessment Type: Patient Reported Outcomes

Length of Test: 05 Minutes or Less

Time to Administer:

<5 Minutes

Number of Items: There are 26 items in the entire bank. The short form has 9 items. The CAT can present 4-12 items, depending on the user's time vs. accuracy preferences.

Equipment Required:

The Short Form (SF) requires only the printed form and a pencil. A CAT administration requires a desktop, laptop, or tablet computer with internet connection and login to AssessmentCenter.net.

 

Access to the short form, and administration of CATs through Assessment Center, is available through SCI-QOL@udel.edu.  

Training Required: Yes. SCI-QOL Bowel Management Difficulties article (Tulsky et al., 2015) and, if administering CATs, the Assessment Center User Manual.

Type of training required: Reading an Article/Manual

Cost: Free

Actual Cost:

Free

Age Range: Adult: 18-64 years, Elderly adult: 65+

Administration Mode: Computer

Diagnosis: Spinal Cord Injury

Populations Tested:

Spinal Cord Injury

Standard Error of Measurement (SEM):

Depends upon mode of administration:

• Full Item Bank: Mean SEM= 0.28 (Range= 0.10-0.59)
• 9-Item Short Form: Mean SEM= 0.36 (Range= 0.15 - 0.60)
• 9-Item Fixed CAT: Mean SEM= 0.34 (Range= 0.12-0.59)
• Variable-length CAT: Mean SEM= 0.33 (Range= 0.13 - 0.56)
• Variable Length CAT (Min 4): Mean SEM= 0.35 (0.17-0.56) 

Minimal Detectable Change (MDC):

Calculated Using Mean SEM:

• Full Item Bank: MDC= 12.27
• 9-Item Fixed CAT: MDC= 11.8
• Variable Length CAT: MDC= 11.91

Minimally Clinically Important Difference (MCID):

Not Established

Cut-Off Scores:

Not Established

Normative Data:

(n= 757; Mean Age= 42.9, SD= 15.5; Time Post Injury= 6.7, SD= 9.9; 42% Paraplegia, 58% Tetraplegia)

Test-retest Reliability:

Traumatic SCI(Tulsky et al., 2015)

• Adequate: (Pearson's r= 0.74)
• Adequate: (ICC= 0.74)

Interrater/Intrarater Reliability:

Not Applicable

Internal Consistency:

Traumatic SCI(Tulsky et al., 2015)

• Full Item Bank - Excellent: (Cronbach's Alpha= 0.95)

Criterion Validity (Predictive/Concurrent):

Not Established

Construct Validity (Convergent/Discriminant):

Not Established

Content Validity:

Items were derived from focus groups and interviews with individuals with traumatic SCI (n=65) and clinicians who specialize in SCI care (n=42). (see Tulsky et al., 2011).

Face Validity:

Not statistically assessed, but content was generated in collaboration with SCI patients and expert clinicians, so face validity is believed to be strong.

Floor/Ceiling Effects:

Traumatic SCI(Tulsky et al., 2015)

 

Full Item Bank:

• Floor Effect: Adequate (16%)
• Ceiling Effect: Excellent (0.13%)

9-Item Short Form:

• Floor Effect: Poor (30%)
• Ceiling Effect: Excellent (0.4%)

9-Item Fixed-length CAT:

• Floor Effect: Poor (28.5%)
• Ceiling Effect: Excellent (0.13%)

Variable Length CAT (Min 8):

• Floor Effect: Adequate to Excellent (2.64%)
• Ceiling Effect: Excellent (0.13%)

Variable-length CAT (Min 4):

• Floor Effect: Adequate to Excellent (2.64%)
• Ceiling Effect: Excellent (0.13%)

Responsiveness:

Not Established

Considerations:

None

Bibliography:

Tulsky, D.S., Kisala, P. Tate, D.G., Spungen, A.M., & Kirshblum, S.C. (2015). Development and psychometric characteristics of the SCI-QOL Bladder Management Difficulties and Bowel Management Difficulties item banks and short forms and the SCI-QOL Bladder Complications Scale. Journal of Spinal Cord Medicine, 38(3), 288-302.

 

Tulsky, D.S., Kisala, P.A., Victorson, D. Tate, D., Heinemann, A.W., Amtmann, D., & Cella, D. (2011). Developing a contemporary patient-reported outcomes measure for spinal cord injury. Archives of Physical Medicine and Rehabilitation, 92(10), S44-S51.

Year published: 2015

Instrument in PDF Format: Yes

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