Culture, Health, Function, and Participation among American Indian and Alaska Native Children and Youth with Disabilities: an exploratory qualitative analysis

Publication date: Available online 19 December 2018

Source: Archives of Physical Medicine and Rehabilitation

Author(s): Molly Fuentes, Kathryn Lent

Abstract

Objective

To investigate the influence of traditional culture on health, disability, and health care services among American Indian and Alaska Native (AI/AN) children and youth with disabilities

Design

Exploratory descriptive qualitative analysis

Setting

Tertiary children's hospital

Participants

A purposively sampled group (n=17) of AI/AN youth (n=4) with disability lasting at least 6 months age 8 to 24-years old and parents (n=13) of AI/AN children with disability lasting at least 6 months age 6 months to 17-years-old.

Interventions

Not applicable

Main Outcome Measures

Participant responses to semi-structured interview questions regarding health beliefs, daily activities, participation in cultural activities, and experiences receiving or having their child receive healthcare and rehabilitation services.

Results

Three themes were identified: (1) Participation in cultural activities is important for health as an AI/AN person; (2) Experiences participating in cultural activities with functional differences; and (3) Lack of recognition of the culturally-related functional needs of AI/AN children with disabilities by rehabilitation providers. Children participated in cultural activities primarily through attendance at community-wide events. Barriers to participation in cultural activities included environmental barriers and adaptive mobility devices ill-suited to rough terrain. Participants perceived addressing functional needs related to culture and cultural activities was not an expected part of rehabilitation services.

Conclusions

AI/AN children with disabilities experience barriers to participation in cultural activities, making it hard for them to achieve their definition of ideal health. Rehabilitation services have not identified or addressed these unmet culturally-related functional needs.

from Rehabilitation via xlomafota13 on Inoreader https://ift.tt/2SZ7vHp
via IFTTT