Perceptions of person-centered care following spinal cord injury

Publication date: Available online 21 April 2016
Source:Archives of Physical Medicine and Rehabilitation
Author(s): Allen W. Heinemann, Sherri L. LaVela, Bella Etingen, Ana Miskovic, Sara M. Locatelli, Holly DeMark Neumann, David Chen
Objectives(1) Evaluate perceptions of person-centered care (PCC) in individuals with traumatic spinal cord injury (SCI), and (2) examine perceived differences in PCC concepts between patients continuing to receive any services from an SCI Model Systems (SCIMS) facility vs. those who do not.DesignWe used a cross-sectional design, mailed a paper survey, and followed-up with a second mailing to non-respondents after 4 weeks.SettingCommunity.ParticipantsParticipants were individuals who received initial rehabilitation at a SCIMS facility and agreed to participate in this research study (n=326). We distinguished respondents who received any SCIMS outpatient services in the past 2 years (SCIMS users, n=179) or longer ago (SCIMS non-users, n=134).InterventionsNot applicable.Main Outcome MeasuresParticipants completed the Patient Activation Measure (PAM), the Patient Assessment of Chronic Illness Care (PACIC), the Global Practice Experience measure, and 5 Press-Ganey questions that assessed key elements of patient- and family-centered care.ResultsPatient perspectives of chronic illness care were more positive in the SCIMS users than non-users (2.91 v. 3.15, p<0.05); the difference is attributable primarily to higher subscale scores on goal setting and tailoring. The SCIMS users and non-users did not differ in terms of PAM overall score or activation stage, Global Practice Experience, or Press-Ganey scores.ConclusionsSCIMS users and non-users differed on perceptions of chronic illness care (largely the goal setting and tailoring component), which were more favorable for Model System users than non-users. Results can guide strategies to enhance PCC practices following inpatient rehabilitation.



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